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21 Feb

I asked my IBD nurse and she suggested mesalazine suppositories, but given how little these helped me with the UC pre-colectomy (hence the colectomy…), I am worried that this irritating problem is going to persist – does anyone have any experience with this that could shed some light here/ reassure me?!

Secondly, I got the colectomy with the understanding that it would be the first step of a 3-step pouch formation, but am starting to wonder if I even want the pouch surgery at all.

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These are stories of happenings and feelings about the Jpouch surgery, preliminary surgeries, and life without a colon.

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I put something on my bottom every time I go to the bathroom. There are days I had rather not eat because of having to go to the bathroom.

I wondered if it might be better to just keep the bag, since it had made my life measurably better. While I felt a lot better, it was difficult to go jogging with the ostomy bag and I always worried that someone would notice or it would leak when I was out in public.

I had a couple issues when I had my 2nd surgery, though not as bad as some others had.

[Reply]Hi Phoebe, I just had my 2nd surgery (it was a 2 part) about a year ago.

I remember thinking some of the same things you mentioned. I was tired of changing it, worrying about leaks, and dealing with some of it’s physical limitations.